Coming Soon: "Shine the LIght on Sickle Cell" in celebration of World Sickle Cell Day - June 19

Sickle Cell Program Support

We support comprehensive, multi-disciplinary state-of-the-art treatment and research at leading institutions in the Mid-Atlantic area:

Nemours Alfred I. duPont Hospital for Children

– Wilmington, Delaware

Johns Hopkins Sickle Cell Center for Adults

– Baltimore, Maryland

Herman and Walter Samuelson Children’s Hospital at Sinai

– Baltimore, Maryland

artSPEAKS Program

The artSPEAKS Program brings together sickle cell kids of all ages and their families for fun and engaging art workshops. Participants create powerful and compelling works that express the pain, struggles, triumphs and hopes of living with sickle cell disease.

Awareness and Advocacy

We raise awareness about sickle cell disease and trait during September, National Sickle Cell Awareness Month, and throughout the year.

Download an awareness poster to display during September, or year-round, at your school, workplace, church, or any place people gather.

Memberships and Affiliations

oneSCDvoice Engagement Working Group (2017-present)

Johns Hopkins PCORI Team (2014-present)

Johns Hopkins SiNERGe Team (2014-present)

Maryland iHomes Network (2010-2014)

Maryland Statewide Steering Committee on Services for Adults with Sickle Cell Disease (2007-2012)

INDIVIDUALS LIVING WITH SCD IN THE U.S.

HOSPITALIZATIONS ANNUALLY DUE TO SCD IN THE U.S.

NEW DRUG APPROVED BY FDA IN LAST 20 YEARS

NEW DRUGS CURRENTLY IN PHASE III CLINICAL TRIALS