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SHINE THE LIGHT ON SICKLE CELL

JUNE 19, 2021

A Day of Community Action on World Sickle Cell Day

Shine The Light On Sickle Cell

A national awareness campaign to celebrate World Sickle Cell Awareness Day on June 19, 2021.

We invite you to join with friends, family, neighbors and others in your community, as people around the nation and across the globe, host and hold local gatherings to shine the light on sickle cell disease. Together, we must and will find a universal cure for sickle cell disease!

Want more information about organizing and/or attending a “Shine the Light on Sickle Cell” event in your community?

Shine The Light On Sickle Cell. A Collaboration between SiNERGe and Sickle Cell Disease Association of America, Inc. Shine the Light on Sickle Cell is supported by the Health Resources and Services Administration (HRSA) as part of the Sickle Cell Disease Treatment Demonstration Project. For more information visit HRSA.gov.

What is Shine the Light on Sickle Cell?

Sickle Cell Disease community-based organizations are organizing gatherings all across the nation and around the world to “Shine the Light on Sickle Cell Disease” while celebrating World Sickle Cell Disease Awareness Day in order to elevate awareness of this serious public health concern affecting more than 100,000 people in the United States and 100 million people around the world.

Who is organizing Shine the Light on Sickle Cell?

Shine the Light on Sickle Cell is a collaboration between SiNERGe (Sickle Cell improvement in the NorthEast ReGion through education) and the Sickle Cell Disease Association of America.  Shine the Light is supported by the Health Resources and Services Administration (HRSA) as part of the Sickle Cell Disease Treatment Demonstration Project.  For more information, visit HRSA.gov.

 

Members of the 2021 Planning Committee for Shine the Light are:

 

Zemoria Brandon

Co-Chair, Shine the Light Steering Committee; Administrator/Social Worker, Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter

 

Donnette Carroll

Co-Chair, Shine the Light Steering Committee; Board Chair, Sickle Cell Thalassemia Patients Network, (SCTPN)

 

Judy Anderson

Executive Director, Sickle Cell Association, Norfolk, Virginia

 

Yvette Armstead

CEO, Armstead-Barnhill Foundation for Sickle Cell Anemia

 

Jacqueline Baker

Founder, The Westchester Sickle Cell Advocacy Network

 

Sakiyyah Burwell-Darden

Executive Assistant/CHW, Sickle Cell Association of New Jersey

 

Beverley Francis-Gibson

President & CEO, Sickle Cell Disease Association of America

 

Barbara Harrison

Director at Large, Sickle Cell Association of the National Capital Area, Inc

 

Linda Howard, Member Services Coordinator, Sickle Cell Disease Association of America

 

Betty Johnson

SiNERGe Liaison, Association for the Prevention of Sickle Cell Anemia Harford and Cecil Counties and the Eastern Shore

 

Mary LaMar

Executive Director, Sickle Cell Association of New Jersey

 

Meryl Lancaster

Board Member, Citizens for Quality Sickle Cell Care

 

Sabrina Lewis

Ambassador of Wellness, CHW, Sickle Cell Thalassemia Patients Network (SCTPN)

 

Murine Lusakweno-Chandler

Outreach Liaison/Educator, Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter

 

Crystal Rivas

Administrative Assistant, Candice’s Sickle Cell Fund

 

Shanta Robertson

Secretary, Maryland Sickle Cell Disease Association

 

Sarai Santiago

Community Health Worker, Sickle Cell Thalassemia Patients Network (SCTPN)

 

Stanley Simpkins

Executive Director, Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter

What is the cost to participate in Shine the Light on Sickle Cell?

There is no cost to participate in Shine the Light.

Does Shine the Light on Sickle Cell raise money or collect fees?

We do not collect money or fees in connection with Shine the Light.  Community-based and non-profit organizations are solely responsible for the events and activities that they organize to celebrate Shine the Light.  Please refer to the specific organization for details about the costs, if any, associated with their events or activities.

How can community-based organizations and non-profit organizations get involved?

Hosting a Shine the Light community gathering is easy … just follow these 5 steps:

  1. Select … a program/activity/event
  2. Prepare … for your gathering
  3. Promote … your gathering
  4. Hold … your gathering on June 19
  5. Celebrate … your success

No registration is required to host a Shine the Light.

But, we’d love to hear about it!  Send us an email at ShinetheLightonSickleCell@gmail.com or post a note on the Shine the Light Facebook Event page.

Is participation limited to community-based organizations and non-profit organizations?

Anyone, and any type of business or organization, can participate in Shine the Light!  Take a look at the Community Gathering Guide for tips on how to join in.

Paint The Town Red

Philadelphia 2021

Organized by:

Sickle Cell Disease Association of America – Philadelphia/Delaware Valley Chapter

 

Photo Credit: Imagic Digital

INDIVIDUALS LIVING WITH SCD IN THE U.S.

HOSPITALIZATIONS ANNUALLY DUE TO SCD IN THE U.S.

NEW DRUGS APPROVED BY FDA SINCE 2017

THERAPIES CURRENTLY IN PHASE III CLINICAL TRIALS