Awareness

help spread the word about sickle cell disease

Education

learn about the impact of sickle cell disease

Hope

find out about research for new treatments and a universal cure

SHINE THE LIGHT ON SICKLE CELL

JUNE 19, 2024

A Day of Community Action on World Sickle Cell Day

It’s our 6th Year!

HELPFUL INFORMATION TO SUPPORT
YOUR EFFORTS TO SHINE THE LIGHT!

Event

Shine The Light On
Sickle Cell

A community awareness campaign to celebrate World Sickle Cell Awareness Day on June 19, 2024.

We invite you to join with friends, family, neighbors and others in
your community, as people around the nation and across the
globe, host and hold local gatherings to shine the light on sickle
cell disease. Together, we must and will find a universal cure for
sickle cell disease!

Want more information about organizing an event?

Visit Our FaceBook Events Page

Download and share flyer

Resources

Download and share these resources as you prepare to Shine the Light!

Community Gathering Guide

Call to Action

FAQs

What is Shine the Light on Sickle Cell?

Sickle Cell Disease community-based organizations are organizing gatherings all across the nation and around the world to “Shine the Light on Sickle Cell Disease” while celebrating World Sickle Cell Disease Awareness Day in order to elevate awareness of this serious public health concern affecting more than 100,000 people in the United States and 100 million people around the world.

Who is organizing Shine the Light on Sickle Cell?

Shine the Light on Sickle Cell is organized by SiNERGe (Sickle Cell improvement in the NorthEast ReGion through education) Community-Based Organizations. Shine the Light is supported by the Health Resources and Services Administration (HRSA) as part of the Sickle Cell Disease Treatment Demonstration Project. For more information, visit HRSA.gov.

Members of the 2024 Planning Committee for Shine the Light are:

Chair, Shine the Light on Sickle Cell Planning Committee

Zemoria Brandon

Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter (PA)

Chair, Outreach Subcommittee

Darlene Young

Sickle Cell Association of New Jersey (NJ)

Barbara Harrison, Sickle Cell Association of the National Capital Area (DC)
Judy Anderson, Sickle Cell Association, Inc. (VA)
Angela Mercado, Candice’s Sickle Cell Fund Inc. (NY)

Chair, Public Relations Subcommittee

Judy Anderson

Sickle Cell Association (VA)

Regina Hartfield, Sickle Cell Disease Association of America (MD)

Co-Chairs, Social Media Subcommittee

Murine Lusakweno-Chandler

Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter (PA)

Isaiah Martin

Sickle Cell Disease Association of New Jersey (NJ)

Teanika Hoffman, Sickle Cell Coalition of Maryland (MD)
Sarahia Benn, Association for the Prevention of Sickle Cell Anemia, Harford and Cecil Counties and the Eastern Shore (MD)
Karen Byer, SiNERGe CBO Coordinator (MD)

Social Media Consultant

Brand3 (MD)

Public Relations Consultant

ShinePR (PA)

What is the cost to participate in the Shine the Light on Sickle Cell?

There is no cost to participate in Shine the Light.

Does Shine the Light on Sickle Cell raise money or collect fees?

We do not collect money or fees in connection with Shine the Light. Community-based and non-profit organizations are solely responsible for the events and activities that they organize to celebrate Shine the Light. Please refer to the specific organization for details about the costs, if any, associated with their events or activities.

Is participation limited to community-based organizations and non-profit organizations?

Anyone, and any type of business or organization, can participate in Shine the Light! Take a look at the Community Gathering Guide for tips on how to join in.

How can community-based organizations and non-profit organizations get involved?

Hosting a Shine the Light community gathering is easy … just follow these 5 steps:

Select … a program/activity/event
Prepare … for your gathering
Promote … your gathering
Hold … your gathering on June 19
Celebrate … your success

No registration is required to host a Shine the Light event.

But, we’d love to hear about it! Tweet us @WEPSCF or post a note on the Shine the Light Facebook Event page.

Shine the Light on Sickle Cell is supported by the Health Resources and Services Administration (HRSA) as part of the Sickle Cell Disease Treatment Demonstration Project.
For more information visit HRSA.gov.