Stay Informed. Stay Healthy. Stay Safe.

Terms of Use

Welcome to the William E. Proudford Sickle Cell Fund, Inc. (WEPSCF) website. By using our website, you are agreeing to comply with and be bound by the following terms of use, which together with our privacy policy govern the WEPSCF’s relationship with you in relation to this website. Please review the following terms carefully. If you do not agree to these terms, you should not use this website. The term, “William E. Proudford Sickle Cell Fund, Inc.” or “WEPSCF” or “us” or “we” or “our” refers to the William E. Proudford Sickle Cell Fund, Inc., the owner of this website. The term “you” refers to the user or viewer of our website.

Disclaimer

The information contained in this website is for general information purposes only. It is subject to change without notice. The information is provided by “WEPSCF” and while we will attempt to keep the information up-to-date and correct, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the website or the information, products, services, or related graphics contained on the website for any purpose. Any reliance you place on such information is therefore strictly at your own risk, for which we shall not be liable. It shall be your own responsibility to ensure that any products, services or information available through this website meet your specific requirements. WEPSCF makes no warranties of any kind regarding the operation of this website, including but not limited to any warranty of accuracy, completeness, currency, reliability, merchantability or fitness for a particular purpose, or any warranty that these pages, or the server that makes them available, are free of viruses, worms, Trojan horses, other harmful elements or other code that manifest contaminating or destructive properties and such warranties are expressly disclaimed. WEPSCF takes no responsibility for and will not be liable for the website being temporarily unavailable due to technical issues beyond our control.

Third Party Links

WEPSCF may choose various third party websites to link to from this website. However, even if the third party is affiliated with WEPSCF, WEPSCF has no control over the nature, content, suitability and availability of those sites, each of which have separate privacy and data collection practices, independent of WEPSCF. WEPSCF has no responsibility or liability for these independent policies or actions and is not responsible for the privacy practices or the content of such websites. These linked websites are only for your convenience, and therefore, you access them at your own risk. WEPSCF does not endorse the organizations whose linked, external websites appear on the WEPSCF site, or vice versa. In addition, WEPSCF does not endorse products and/or services that such organizations may offer or views expressed by such organizations. Furthermore, WEPSCF does not control or guarantee the currency, accuracy, relevance, suitability or completeness of information found on linked, external websites. You acknowledge that such information and materials may contain inaccuracies or errors and we expressly exclude liability for any such inaccuracies or errors to the fullest extent permitted by law.

Copyright

The entire content included in this website, including but not limited to design, layout, look, appearance, and graphics, is copyrighted as a collective work under the United States and other copyright laws, and is the property of WEPSCF. The collective work includes works that may be licensed to WEPSCF. Copyright 2007. All rights reserved. You may display and, subject to any expressly stated restrictions or limitations relating to specific material, download or print portions of the material from the different areas of the website solely for your own non-commercial use. You may copy the content to individual third parties for their personal use, but only if you acknowledge the website as the source of the material. Any other use, including but not limited to the reproduction, distribution, display or transmission of the content of this website for commercial purposes, is strictly prohibited without our express written permission. You further agree not to change or delete any proprietary notices from materials downloaded from the website.

Liability

You agree that you will hold harmless WEPSCF and its officers, directors, agents, employees, and volunteers from all claims arising out of or related to your access or use of, or your inability to access or use, this website or the information, services, products or messages contained in this website or other websites to which it is linked, including but not limited to claims that you have found something you have heard, viewed, or downloaded from this website or another website to which it is linked to be obscene, offensive, defamatory, or infringing upon your intellectual property rights. In no event will WEPSCF or the contributors of information to this website be liable to you or anyone else for any decision made or action taken by you in reliance on such information or for any consequential, special or similar damages, even if advised of the possibility of such damages. YOU HEREBY RELEASE NAD FOREVER WAIVE ANY AND ALL CLAIMS YOU MAY HAVE AGAINST WEPSCF, ITS OFFICERS, DIRECTORS, AGENTS, EMPLOYEES, AND VOLUNTEERS FOR LOSSES OR DAMAGES YOU SUSTAIN IN CONNECTION WITH YOUR USE OF THIS WEBSITE.

Links from Other Websites

WEPSCF may grant the owner of a website permission to use a hyperlink to this website from its website, provided: (a) any such link must clearly be marked “William E. Proudford Sickle Cell Fund, Inc.” (b) the appearance, position, and other aspects of either the link or the host website may not be such as to damage or dilute the goodwill associated with WEPSCF’s name and trademarks, (c) the appearance, position and other aspects of either the link or the host website may not create the false appearance that any other entity is associated with or sponsored by WEPSCF, and (d) the link, when activated by a user, must display this website full-screen and not within a “frame” on the linked website. The owner of any website with a hyperlink to this website agrees to the foregoing terms and agrees to delete any such link upon notice from WEPSCF that such permission has been revoked, which notice may be given at any time and for any reason.

WEPSCF is not responsible for the information or materials contained on websites linking to this website. Links to this website are provided for convenience only and are not intended as an endorsement by WEPSCF of the organization or individual operating the host website or a warranty of any type regarding the host website or the information on the host website.

Governing Law

This website, excluding linked sites, is controlled by WEPSCF, which is headquartered in the State of Delaware, United States of America. It can be accessed from all 50 states, as well as, from other countries around the world. As each of these places has laws that may differ from those of Delaware, by accessing this website both you and WEPSCF agree that the statutes and laws of the State of Delaware, without regard to conflicts of laws principles thereof, will apply to all matters arising from or relating to use of this website. You and WEPSCF also agree and hereby submit to the exclusive personal jurisdiction and venue of Kent County, Delaware and the United States District Court for the district of Delaware with respect to such matters. WEPSCF makes no representation that materials on the website are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this website from other locations do so on their own initiative and are responsible for compliance with local laws.

INDIVIDUALS LIVING WITH SCD IN THE U.S.

HOSPITALIZATIONS ANNUALLY DUE TO SCD IN THE U.S.

NEW DRUGS APPROVED BY FDA SINCE 2017

THERAPIES CURRENTLY IN PHASE III CLINICAL TRIALS