On June 19, "Shine the LIght on Sickle Cell" in celebration of World Sickle Cell Day!

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Awareness

help spread the word about sickle cell disease

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Education

learn about the impact of sickle cell disease

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Hope

find out about research for new treatments and a universal cure

Our vision is a world without sickle cell disease

EXPLORE WHAT WE DO

PROGRAM SUPPORT

We support comprehensive, multi-disciplinary state-of-the-art treatment and research at leading institutions in the Mid-Atlantic area:

Nemours Alfred I. duPont Hospital for Children

Johns Hopkins Sickle Cell Center for Adults

Herman and Walter Samuelson Children’s Hospital at Sinai

artSPEAKS!

The artSPEAKS Program encourages sickle cell kids of all ages and their families to share their creative talents with the world. Participants create powerful and compelling works that express the pain, struggles, triumphs and hopes of living with sickle cell disease and trait.

SiNERGe

The mission of SiNERGe is  to gather momentum in the fight against sickle cell disease by fostering connections among community-based organizations in the Northeast region.

AWARENESS & ADVOCACY

We raise awareness about sickle cell disease and trait during September, National Sickle Cell Awareness Month, and throughout the year.

Download an awareness poster to display during September, or year-round, at your school, workplace, church, or any place people gather.

Our mission is to support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease.

INDIVIDUALS LIVING WITH SCD IN THE U.S.

HOSPITALIZATIONS ANNUALLY DUE TO SCD IN THE U.S.

NEW DRUG APPROVED BY FDA IN LAST 20 YEARS

NEW DRUGS CURRENTLY IN PHASE III CLINICAL TRIALS