Sickle Cell Program Support

We support comprehensive, multi-disciplinary state-of-the-art treatment and research at leading institutions in the Mid-Atlantic area:

Nemours Alfred I. duPont Hospital for Children

– Wilmington, Delaware

Johns Hopkins Sickle Cell Center for Adults

– Baltimore, Maryland

Herman and Walter Samuelson Children’s Hospital at Sinai

– Baltimore, Maryland

Sickle Cell Program in the Center for Special Health Care Needs at ChristianaCare

-Wilmington, Delaware

artSPEAKS Program

The artSPEAKS Program brings together sickle cell kids of all ages and their families for fun and engaging art workshops. Participants create powerful and compelling works that express the pain, struggles, triumphs and hopes of living with sickle cell disease.

Awareness and Advocacy

We raise awareness about sickle cell disease and trait, advocate for expanded access to high-quality care, and encourage participation in clinical studies.

Download an awareness poster to display during National Sickle Cell Awareness Month in September – or year-round – at your school, workplace, church, or any place people gather.

Memberships and Affiliations

Johns Hopkins SiNERGe Team (2014-present)

Johns Hopkins ASH Clinical Trial Network Project Community Advisory Board (2020-2023)

oneSCDvoice Engagement Working Group (2017-2019)

Johns Hopkins PCORI ESCAPED Team (2015-2018)

Maryland iHOMES Network (2010-2014)

Maryland Statewide Steering Committee on Services for Adults with Sickle Cell Disease (2007-2009)

INDIVIDUALS LIVING WITH SCD IN THE U.S.

HOSPITALIZATIONS ANNUALLY DUE TO SCD IN THE U.S.

NEW DRUGS APPROVED BY FDA SINCE 2017

GENE THERAPIES APPROVED BY THE FDA