Privacy Policy

This policy outlines how the William E. Proudford Sickle Cell Fund, Inc. (WEPSCF) uses and protects any information that you give the William E. Proudford Sickle Cell Fund, Inc. when you use this website. The WEPSCF is committed to ensuring that your privacy is protected. The WEPSCF is the sole owner of and only organization that uses information that may be collected on this site. We will not sell, share, distribute, or rent this information to others under any circumstances. The WEPSCF may change this policy from time to time by updating this page. You should check this page from time to time to ensure that you are comfortable with the policy in force at the time you are visiting, browsing, or viewing the website.

Online Donations, Ticket Sales and Sponsorship Packages

WEPSCF collects the following information through our secure online financial transaction pages: name, title, company name, address, email address, phone number, fax number, and credit card information. This personally identifiable information is used to acknowledge receipt of your donation or purchase of fundraising tickets and/or sponsorship packages.

Mailing List

Our contact information is included on this website. If you choose to send us an email via your email carrier, we may use your contact information to provide you with information regarding the WEPSCF and its events. We will not sell, share, distribute or rent this information to others under any circumstances. If you would like to opt out of any or all of these types of contacts from us, please include a statement in your email request.

Links to Other Websites

WEPSCF’s site includes links to other websites to enable you to visit other websites of interest easily. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. We are not responsible for the privacy and security practices of any other website or the nature of the content contained on those websites. Please exercise caution and review the privacy statements and terms of use for any and all websites you may visit via these links.

Children’s Privacy

None of the content and information on the WEPSCF website is targeted toward children under 13 years of age. We do not intend to collect or maintain information on our website from persons we know to be younger than 16 unless parental consent has been obtained in writing.

Cookies

Other than specific cases outlined in this policy, WEPSCF does not collect personal information about users and/or how they use this site. WEPSCF does not use “cookies” in order to track information about you or your use of this site.

Changes to this Policy

Changes to this policy may be made at any time and will be added directly to this statement. The WEPSCF will use information in accordance with the version of the Privacy Policy under which it was originally collected. Please check this page from time to time to ensure that you are comfortable with this policy.

Contact Us

If you have specific questions or concerns about this privacy policy, please contact us at info@wepsicklecell.org

INDIVIDUALS LIVING WITH SCD IN THE U.S.

HOSPITALIZATIONS ANNUALLY DUE TO SCD IN THE U.S.

NEW DRUGS APPROVED BY FDA SINCE 2017

GENE THERAPIES APPROVED BY THE FDA