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Awareness

help spread the word about sickle cell disease

Education Bulb Icon

Education

learn about the impact of sickle cell disease

Hope Heart Icon

Hope

find out about research for new treatments and a universal cure

Our vision is a world without
sickle cell disease

EXPLORE WHAT WE DO

PARTNERSHIPS

Program Support

We support comprehensive, multi-disciplinary state-of-the-art treatment and research at leading institutions in the Mid-Atlantic area:

Nemours Alfred I. duPont Hospital for Children

Johns Hopkins Sickle Cell Center for Adults

Herman and Walter Samuelson Children’s Hospital at Sinai

The Center for Special Health Care Needs at ChristianaCare

VOICE

artSPEAKS!

The artSPEAKS Program encourages sickle cell kids of all ages and their families to share their creative talents with the world. Participants create powerful and compelling works that express the pain, struggles, triumphs and hopes of living with sickle cell disease and trait.

COLLABORATION

SiNERGe CBO

The mission of SiNERGe CBO is to gather momentum in the fight against sickle cell disease by fostering connections among community-based organizations in the Northeast region.

INFORMATION

Awareness & Advocacy

We raise awareness about sickle cell disease and trait, advocate for expanded access to high-quality care, and encourage participation in clinical studies.

Download an awareness poster to display during National Sickle Cell Awareness Month in September – or year-round – at your school, workplace, church, or any place people gather.

Our mission is to support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease.

INDIVIDUALS LIVING WITH SCD IN THE U.S.

HOSPITALIZATIONS ANNUALLY DUE TO SCD IN THE U.S.

NEW DRUGS APPROVED BY FDA SINCE 2017

GENE THERAPIES APPROVED BY THE FDA