Our Vision:
Longer, healthier lives for individuals with sickle cell disease.

Avada Theme Image

Mission

Objectives

SAVE THE DATE for the SiNERGe Webinar Series: Bone Marrow Transplants and Gene Therapy

04.28.2017

Participating CBOs

Participation in SiNERGe is open to community-based organizations (CBOs) in the Northeast Region.
If you are a CBO (or know of one) in the Northeast, and are not listed below, please contact us!

FAQ about SiNERGe

Learn more about who we are and what we’re doing to gain momentum in the fight against
sickle cell disease.

SiNERGe stands for the Sickle Cell Improvement in the Northeast region through education. The SiNERGe project is managed by Principal Investigators (PIs) at Johns Hopkins, who work with Site Principal Investigators in seven states, the District of Columbia, the Virgin Islands and Puerto Rico, to increase the number of highly-trained providers that treat sickle patients, and to increase the number of providers who prescribe hydroxyurea.

Visit the Johns Hopkins site for information about the Principal Investigators and Site Principal Investigators for SiNERGe.

There are four regions in the United States with similar projects. Each region has its own principal investigators, objectives and goals.

SiNERGe is a U.S.-based initiative that includes seven states, the District of Columbia, the U.S. Virgin Islands, and Puerto Rico:

  • Delaware
  • District of Columbia
  • Maryland
  • New Jersey
  • New York
  • Pennsylvania
  • Puerto Rico
  • U.S. Virgin Islands
  • Virginia
  • West Virginia
Just as the PIs and Site PIs are working together to improve care in the Northeast region, the CBOs are working collaboratively with each other and with the PIs in order to improve their capacity for serving the sickle cell community. CBOs are engaged in a range of activities, including advocacy, fundraising, education, direct services, and outreach. Through SiNERGe, they share best practices across the region.
The William E. Proudford Sickle Cell Fund has been designated as the Lead CBO Coordinator. WEPSCF has responsibility for coordinating the activities of CBOs throughout the northeast region.
SiNERGe aims to work collaboratively with other state-wide and/or regional initiatives in order to better serve the sickle cell community. For example, SiNERGe focuses on providers, while the Newborn Screening Grant focuses on patients. Working in collaboration, the two initiatives can more effectively serve all stakeholders needed to ensure that patients have access to high-quality care throughout the Northeast region.
Contact our office to join SiNERGe. We welcome any CBO serving the sickle community in the Northeast region. There is no fee associated with participating in SiNERGe.

For the Principal Investigators (Physicians, Researchers):
Ms. Lauren Whiteman, SiNERGe Research Program Manager
Johns Hopkins
601 N. Caroline Street, 7150A
Baltimore, MD 21287
44.287.0608
Lwhitem1@jhmi.edu

For Community-Based Organizations:
Ms. Grace Bigelow, Sinerge Outreach Coordinator
William E. Proudford Sickle Cell Fund Inc.
PO Box 42411
Baltimore, MD 21284
888.893.6735
grace@wepsicklecell.org

Webinar Series

Series open to all interested including: CBOs, patients, caregivers & healthcare providers

View our 2016 Webinar Series on YouTube (WEPSCF)!

February 25, 2016
Living with the Pain of SCD:  Myths, Realities, Hope – Part I

April 29, 2016
Living with the Pain of SCD:  Myths, Realities, Hope – Part II

June 23, 2016
Making a Smooth Transition from Adolescent to Adult SCD Care: Eliminating Barriers, Enhancing Resources – Part I

August 25, 2016
Making a Smooth Transition from Adolescent to Adult SCD Care: Eliminating Barriers, Enhancing Resources – Part II

August 25, 2016 Webinar

Making a Smooth Transition from Adolescent to Adult SCD Care:  Eliminating Barriers, Enhancing Resources Part II

Contact Us

Contact Us
Sending