Nemours/Alfred I. duPont Hospital for Children
Sickle Cell Program
Since 1994, the Division of Hematology/Oncology of the Alfred I. duPont Hospital for Children and the Nemours Children’s Clinic–Wilmington has cared for children and adolescents in the state of Delaware with sickle cell disease. Many of these patients receive their primary care from the Nemours Pediatrics practices throughout the state. Children from nearby Pennsylvania and Southern New Jersey are also served through this program.
The Sickle Cell Program at the Alfred I. duPont Hospital for Children currently provides a wide range of high-level healthcare services to more than 200 patients with sickle cell disease and related hemoglobinopathies. A multidisciplinary team staffs this program, including board–certified pediatric hematologists, a sickle cell advanced practice nurse, a pediatric psychologist, a social worker, a nutritionist, a child life therapist and pediatric inpatient and outpatient hematology nurses.
The Sickle Cell Team continually strives to provide comprehensive, cohesive and coordinated, family-centered care to sickle cell patients and their families through the following high quality health care services:
The Outpatient Clinic, staffed by members of the Sickle Cell team utilizes a multidisciplinary, family-centered approach for every outpatient encounter.
- Newborn screening follow-up
- Sickle cell preventative care
- Treatment of sickle cell related complications
- Access to a full range of other pediatric sub-specialists who treat the range of unique problems caused by sickle cell disease including a combined orthopedic/hematology clinic
- Patient/family and community education
- Hydroxyurea therapy
- Transfusion and iron chelation therapy
- Specialized diagnostic testing such as transcranial Doppler
- Counseling and social services.
- Specialized Inpatient Hematology Unit is staffed by a multi-disciplinary healthcare team experienced in caring for the complex medical needs of children with sickle cell disease.
- Outpatient Day Therapy Room offers a range of blood transfusion services for patients with sickle cell disease including erythrocytopheresis, partial exchange transfusion as well as outpatient pain management services.
- Around-the-clock emergency room offers coverage and consultations as well as 24-hour phone access to a pediatric hematologist.
- School Outreach Program assists school personal in managing children with sickle cell in the school setting.
- Transition Program helps children move from pediatric to adult hematology care.
- Participation in a national level research consortium through the NIH sponsored Sickle Cell Clinical Trials Network
- Behavioral Health Care Services include psychosocial assessments and counseling, neuropsychological evaluations and comprehensive case management.
- Bone Marrow Transplantation Services: HLA typing and BMT consultations.
- Outreach Pediatric Outpatient Sickle Cell Clinics in Sussex County, Delaware and Atlantic City, New Jersey provide further access to sickle cell care.
Caring for sickle cell patients is a team effort.
At the Alfred I. duPont Hospital for Children, we continually collaborate with our patients and families, healthcare team members, and the community at large. Our goal is to improve the life of every child with sickle cell disease who comes to us for care.