Help Build Sickle Cell Awareness In Your Community

If You’re a Patient, a Parent, or At Risk…

  • Pregnant or thinking of having a baby? Ask for a screening test for sickle cell trait.
  • Send your partner for screening, too.
  • Remember to ask your baby’s doctor about your newborn’s screening results.
  • Educate yourself about sickle cell disease and its treatment.
  • Stay in touch with your/your child’s doctors and follow their instructions to stay healthy.
  • Tell your child’s school about special sickle cell needs upon enrollment.
  • Tell your employer about your sickle cell needs upon hiring.
  • Connect with a hospital that treats sickle cell BEFORE you have a crisis.

If You’re a Family Member or Friend…

  • Understand that sickle cell families need support.
  • Stay in touch. Let them know you’re there to help.
  • Offer child care and transportation when it’s needed.
  • Encourage young adults to learn about their disease and stay
    up-to-date with self-care.
  • Ask for screening for sickle cell trait, and If possible, donate blood.

If You’re a School Administrator…

  • Make sure your staff knows if a student has sickle cell disease.
  • Connect with Sickle Cell experts who can advise your students and staff
    about sickle cell.
  • Hold an “Awareness Day” to educate teachers, staff and students about sickle cell.
  • Coordinate with your students’ parents and physicians to get help quickly in a crisis.
  • Have alternative learning plans available for students during illness.
  • Hold a blood drive at your school.

If You’re an Employer…

  • Make information about sickle cell available through your health services department.
  • Understand that your employees may have periods of absence when they or their children are in sickle cell crisis.
  • Support patients’ efforts to obtain routine medical care so they can stay well
    and keep working hard.
  • Make family medical leave easily available.
  • Host blood drives.

If You’re a Health Care Provider…

  • Include sickle cell trait and disease on your patient history form.
  • Become familiar with the protocol for treating a sickle cell crisis.
  • Use the Sickle Cell Information Center – – as a resource.
  • Identify a sickle cell expert in your area.
  • Refer patients with the sickle cell trait to a genetic counselor.
  • Post information about sickle cell disease in your office.
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Our mission is to support Sickle Cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease. Learn More