Media Kit

Important Statistics

  • SCD is the most common genetic blood disorder in the U.S., affecting 70,000-100,000 Americans (Cystic Fibrosis affects about 30,000)
  • SCD occurs in 1/500 African American births
  • SCD occurs in 1/1000 Hispanic births in the U.S.
  • Children with SCD are 200 to 400 times more likely to have a stroke
  • Highest risk for stroke for a child with SCD is between ages 2 and 7
  • Individuals with SCD often need regular blood transfusions

Overview of Sickle Cell Disease and its Effect on Life

Sickle Cell Disease (SCD) is a genetic red blood cell disorder where the cells become sickle shaped, hard and sticky. When these cells go through the small blood tubes in the body, they block passageways and break apart, causing serious pain and damage.

Barriers to Treatment

  • Attempting to provide relief during a “pain crisis”
  • Access to treatment and availability of centers
  • Insurance coverage for medical visits and prescriptions
  • Lack of infusion centers to treat patients

Links

The William E. Proudford Sickle Cell Fund helps families in the Mid-Atlantic Region.

Nemours Alfred I. DuPont Hospital for Children

The Sickle Cell Center for Adults at Johns Hopkins

Herman and Walter Samuelson Children’s Hospital at Sinai Hospital

Awareness
help spread awareness of sickle cell disease
Education
get educated on sickle cell disease and your options
Hope
artspeaks program gives sickle cell families a voice

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Our mission is to support Sickle Cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease. Learn More